{"id":1924,"date":"2021-10-01T15:02:17","date_gmt":"2021-10-01T15:02:17","guid":{"rendered":"https:\/\/www.sbhss.eu\/?p=1924"},"modified":"2021-10-01T15:03:30","modified_gmt":"2021-10-01T15:03:30","slug":"nar-kan-vi-dela-halsodata-inom-eu","status":"publish","type":"post","link":"https:\/\/www.sbhss.eu\/sv\/nar-kan-vi-dela-halsodata-inom-eu\/","title":{"rendered":"N\u00e4r kan vi dela h\u00e4lsodata inom EU?"},"content":{"rendered":"

\"\"<\/p>\n

Just nu h\u00e5ller EU-kommissionen p\u00e5 att f\u00f6rbereda ett lagf\u00f6rslag till ett europeiskt h\u00e4lsodataomr\u00e5de (EDHS). I veckan tr\u00e4ffade ERRIN EU-kommissionen som gav en statusuppdatering om arbetet med f\u00f6rslaget. Vi fick \u00e4ven ta del av exempel fr\u00e5n europeiska regioner och projekt som p\u00e5 olika s\u00e4tt hanterat delning av \u00a0data inom v\u00e5rden.<\/p>\n

Det prim\u00e4ra syftet med det europeiska h\u00e4lsodataomr\u00e5det \u00e4r att patienten ska ha tillg\u00e5ng till sin h\u00e4lsodata i andra EU-l\u00e4nder. Konstantin Hypp\u00f6nen fr\u00e5n EU-kommissionens generaldirektorat f\u00f6r folkh\u00e4lsa var tydlig med att det inte handlar om att samla all journaldata i ett moln, utan att det handlar om att skapa en m\u00f6jlighet at dela data utifr\u00e5n specifika anledningar mellan specifika akt\u00f6rer. Idag \u00e4r problemet att det \u00e4r sv\u00e5rt att f\u00e5 tillg\u00e5ng till sin data n\u00e4r man s\u00f6ker v\u00e5rd i ett annat EU-land. Detta beror till exempel p\u00e5 att det fortfarande \u00e4r begr\u00e4nsad tillg\u00e5ng elektroniska data i flera l\u00e4nder, men ocks\u00e5 att det finns begr\u00e4nsningar g\u00e4llande interoperabilitet d\u00e5 man anv\u00e4nder olika strukturer och format. Det finns redan idag flera regelverk som ska st\u00f6tta delandet av data s\u00e5som crossber-border healthcare directive och GDPR, men med det nya h\u00e4lsodataomr\u00e5det ska man ta ytterligare ett steg mot harmonisering. M\u00e5nga h\u00e4lso- och sjukv\u00e5rdsakt\u00f6rer, inklusive deltagare p\u00e5 m\u00f6tet, upplever att GDPR \u00e4r ett av hindren f\u00f6r att dela data. Fr\u00e5n EU-kommissionen tycks det dock inte finnas intresse att \u00e5terigen \u00f6ppna upp GDPR f\u00f6r \u00f6versyn. N\u00e4r akten f\u00f6rhandlades fram var det under sv\u00e5ra diskussioner.<\/p>\n

Det sekund\u00e4ra syftet med h\u00e4lsodataomr\u00e5det \u00e4r forskning och framtagandet av politiska \u00e5tg\u00e4rder. I detta fall handlar det om s\u00e5 kallade sekund\u00e4r anv\u00e4ndning och \u00e5teranv\u00e4ndning av data. De som ska f\u00e5 tillg\u00e5ng till denna data kan vara forskare, l\u00e4kemedelsindustrin och beslutsfattare. F\u00f6r att m\u00f6jligg\u00f6ra detta kr\u00e4vs b\u00e5de regler, styrning, tekniska krav och infrastruktur.\u00a0 Just nu h\u00e5ller man p\u00e5 at genomf\u00f6ra pilotprojektet Tehdas<\/a> tillsammans med flera medlemsstater, inklusive Sverige, om hur detta skulle kunna g\u00e5 till. P\u00e5 m\u00f6tet deltog en representant fr\u00e5n finska innovationsfonden SITRA som \u00e4r samordnare f\u00f6r pilotprojektet. Han bj\u00f6d in alla intresserade att delta p\u00e5 stakeholder forum den 27 oktober. Ni hittar program och anm\u00e4lan h\u00e4r<\/a>. Om piloten \u00e4r framg\u00e5ngsrik ska den skalas upp p\u00e5 europeisk niv\u00e5.<\/p>\n

Sj\u00e4lva lagf\u00f6rslaget till europeiskt h\u00e4lsodataomr\u00e5de kommer presenteras under f\u00f6rsta halvan av 2022 och kommer d\u00e4refter f\u00f6rhandlas i R\u00e5det och Europaparlamentet innan vi slutligen har en antagen r\u00e4ttsakt. R\u00e4tt utformad kan den f\u00f6rhoppningsvis inneb\u00e4r m\u00f6jligheter, snarare \u00e4n hinder, f\u00f6r v\u00e5ra regioner och innovationsakt\u00f6rer.<\/p>\n

P\u00e5 m\u00f6tet deltog \u00e4ven Horisont 2020-projektet Digital Health Europe<\/a> och framf\u00f6rde sina rekommendationer kring vad som \u00e4r viktigt att EU-kommissionen beaktar i framtagandet av f\u00f6rslaget. Dessa kan vara intressanta att ta del av f\u00f6r den som vill ha en analys av vad f\u00f6rslaget kan inneb\u00e4ra i praktiken. De finns tillg\u00e4ngliga h\u00e4r<\/a>.<\/p>\n

Som inspiration till vinsten av att enklare kunna dela h\u00e4lsodata, men \u00e4ven f\u00f6r att identifiera utmaningar, \u00e4r det intressant att blicka mot den regionala niv\u00e5n d\u00e4r projekt redan p\u00e5g\u00e5r. I Th\u00fcringen, Tyskland, har testar man en modell d\u00e4r patienten ger sin till\u00e5telse till sjukhuset att delar h\u00e4lsodata. Denna data kan forskare sedan komma \u00e5t via en central portal. F\u00f6r att undvika problem med personlig integritet n\u00e4r det g\u00e4ller t.ex. bilder, har man nyttjat AI analyserar dessa och tillhandah\u00e5ller anonymiserade data. Th\u00fcringen p\u00e5pekar dock att det inte \u00e4r en optimal process att patienten ska ge tillst\u00e5nd p\u00e5 detta s\u00e4tt, men att man s\u00e5g den som mest l\u00e4mplig utifr\u00e5n GDPR. Det andra exempel kom fr\u00e5n Navarra, Spanien d\u00e4r man nyttjar patientdata f\u00f6r att f\u00f6rb\u00e4ttra styrningen av h\u00e4lso- och sjukv\u00e5rd. F\u00f6r att komma runt GDPR nyttjar man helt anonymiserade data. Se presentationer i l\u00e4nkarna, och kontakta Linda om ni har fr\u00e5gor till n\u00e5gon av regionerna.<\/p>\n

Om det europeiska h\u00e4lsodataomr\u00e5det<\/a><\/p>\n

Presentation EU-kommissionen<\/a><\/p>\n

Presentation TEHDAS<\/a><\/p>\n

Rekommendationer Digital Health Europe<\/a><\/p>\n

Presentation Th\u00fcringen<\/a><\/p>\n

Presentation Navarra<\/a><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Just nu h\u00e5ller EU-kommissionen p\u00e5 att f\u00f6rbereda ett lagf\u00f6rslag till ett europeiskt h\u00e4lsodataomr\u00e5de (EDHS). I veckan tr\u00e4ffade ERRIN EU-kommissionen som gav en statusuppdatering om arbetet med f\u00f6rslaget. Vi fick \u00e4ven ta del av exempel fr\u00e5n europeiska regioner och projekt som p\u00e5 olika s\u00e4tt hanterat delning av \u00a0data inom v\u00e5rden. Det prim\u00e4ra syftet med det europeiska […]<\/p>\n","protected":false},"author":5,"featured_media":1703,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[3],"tags":[],"class_list":["post-1924","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-okategoriserad"],"acf":[],"yoast_head":"\nN\u00e4r kan vi dela h\u00e4lsodata inom EU? - SBHSS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sbhss.eu\/sv\/nar-kan-vi-dela-halsodata-inom-eu\/\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"N\u00e4r kan vi dela h\u00e4lsodata inom EU? - SBHSS\" \/>\n<meta property=\"og:description\" content=\"Just nu h\u00e5ller EU-kommissionen p\u00e5 att f\u00f6rbereda ett lagf\u00f6rslag till ett europeiskt h\u00e4lsodataomr\u00e5de (EDHS). I veckan tr\u00e4ffade ERRIN EU-kommissionen som gav en statusuppdatering om arbetet med f\u00f6rslaget. Vi fick \u00e4ven ta del av exempel fr\u00e5n europeiska regioner och projekt som p\u00e5 olika s\u00e4tt hanterat delning av \u00a0data inom v\u00e5rden. 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